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Disease Specific Sites

The Patient Resource Center was founded in order to assist patients and their families in accessing current information on the management and prevention of cancer to ensure that they receive high quality treatment and gain access to the newest cancer drugs/treatment strategies through the clinical trials process. The Patient Resource Center is an independent and comprehensive source of cancer treatment information provided exclusively for patients and their families.

We have elected to maintain our focus on helping patients learn about their treatment options and promote access to clinical studies. Optimal delivery of cancer care, however, relies on many other factors including financial and legal support, patient advocacy, and other services. Based on our editors’ review, we recommend the following services to meet these special needs of patients and their families.

 

Brain Cancer Sites

CancerConnect Brain Cancer Community:

CancerConnect Brain Cancer Community provides current, comprehensive, reliable information on brain cancer and a community where brain cancer patients can exchange information and get support and inspiration.

American Brain Tumor Association

A complete source of information about brain tumors, treatment options, clinical trials and living with a brain tumor.

CancerCare

Cancer Hope Network

Offers free, confidential one-to-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have undergone a similar experience.

Children’s Brain Tumor Foundation

The mission of the Children’s Brain Tumor Foundation is to improve the treatment, quality of life and long-term outlook for children with brain and spinal cord tumors.

National Brain Tumor Society

Breast Cancer Sites

CancerConnect Breast Cancer Community:

CancerConnect Breast Cancer Community provides current, comprehensive, reliable information on brain cancer and a community where breast cancer patients can exchange information and get support and inspiration.

Breast Cancer Options

BCO provides support and information about effective treatment options, informed patient choice and cancer risk reduction. Their email update, Breast Cancer News, has information on Complementary/Alternative Medicine, Environmental Risk Factors as well as traditional medicine choices. They also have a message board, discount vitamin club and much more.

Breast Cancer Research

Breast Cancer Research aims to serve as a focus for communication in all areas of biology and medicine relevant to breast cancer, with special emphasis on its genetic, biochemical, and cellular bases.

FORCE (Facing Our Risk of Cancer Empowered)

FORCE is a support and information site for women at risk of hereditary breast and ovarian cancer due to family history BRCA genetic status.

HER2 Support

Her2Support.org is an online support group for women whose tumors are HER2-Positive.

Inflammatory Breast Cancer Research Foundation

The IBC Research Foundation is the only cancer research organization which specifically targets inflammatory breast cancer and the research to find its cause. The Foundation has the only literature specifically for IBC: brochures, bookmarks, and an email newsletter, Focus on IBC. The IBC Research Foundation also has three email lists which are for IBC educational and emotional support. Toll free # in U.S. & Canada 1.877.STOP.IBC.

The IBC Network Foundation: Inflammatory Breast Cancer

Living Beyond Breast Cancer

LBBC’s mission is to empower all women affected by breast cancer to live as long as possible with the best quality of life.

National Breast Cancer Coalition

NBCC is a grassroots advocacy organization dedicated to fighting breast cancer.

National Breast Cancer Foundation

The National Breast Cancer Foundation provides information including early signs and symptoms of breast cancer, myths, early detection, breast cancer research and much more.

SHARE Cancer Support: Breast and Ovarian Cancer Support

Susan G. Komen for the Cure

The Pregnant with Cancer Network

Young Survival Coalition

The YSC is dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the YSC seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under.

Childhood Cancer Sites

CancerConnect Childhood Cancer Community:

CancerConnect Childhood cancer Community provides current, comprehensive, reliable information on Childhood cancer and a community where Childhood cancer patients can exchange information and get support and inspiration.

Cancer Hope Network

Offers free, confidential one-to-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have undergone a similar experience.

CancerCare

Candlelighters Childhood Cancer Foundation

CCCF provides information, support, and advocacy for families of children with cancer, survivor of childhood cancer, and professionals who work with them.

Children’s Brain Tumor Foundation

The mission of the Children’s Brain Tumor Foundation is to improve the treatment, quality of life and long-term outlook for children with brain and spinal cord tumors.

Children’s Treehouse Foundation

LiveSTRONG Young Adult Alliance

The Ulman Cancer Fund for Young Adults

Provides free support programs, education and resources to benefit young adults, their families and friends who are affected by cancer and to promote awareness and prevention of cancer.

Colorectal Cancer Sites

CancerConnect Colon Cancer Community:

CancerConnect Colon Cancer Community provides current, comprehensive, reliable information on colon cancer and a community where colon cancer patients can exchange information and get support and inspiration.

My Colon Cancer Coach

My Colon Cancer Coach is a patient-focused, interactive online tool where newly diagnosed colon cancer patients can learn more about their disease including personalized treatment options to discuss with their physician.

CancerCare

Colorectal Cancer Alliance

The Colon Cancer Alliance (CCA) is the oldest and largest national patient advocacy organization dedicated to ending the suffering caused by colorectal cancer. In order to increase rates of screening and survivorship, the CCA provides patient support, public education, supports research and conducts advocacy work across America.

Colorectal Cancer Coalition (C3)

Colorectal Cancer Network

Provides information and links on colorectal cancer, clinical trials, support group locations, stories of survivors and angels, and ways to join in the fight to end colorectal cancer.

Esophageal Cancer Sites

CancerConnect Esophageal Cancer Community:

CancerConnect Esophageal Cancer Community provides current, comprehensive, reliable information on Esophageal cancer and a community where Esophageal cancer patients can exchange information and get support and inspiration.

Cancer Hope Network

Offers free, confidential one-to-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have undergone a similar experience.

CancerCare

Esophageal Cancer Awareness Association

The ECAA’s mission is to promote quality of life for those affected by esophageal cancer.

Kidney Cancer Sites

CancerConnect Kidney Cancer Community:

CancerConnect Kidney cancer Community provides current, comprehensive, reliable information on Kidney cancer and a community where Kidney cancer patients can exchange information and get support and inspiration.

Cancer Hope Network

Offers free, confidential one-to-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have undergone a similar experience.

The Kidney Cancer Association

The Kidney Cancer Association is a membership organization made up of patients, family members, physicians, researchers, and other health professionals.

Leukemia and Lymphoma Sites

CancerConnect Leukemia Cancer Community

CancerConnect Leukemia cancer Community provides current, comprehensive, reliable information on Leukemia cancer and a community where Leukemia cancer patients can exchange information and get support and inspiration.

Cancer Hope Network

Offers free, confidential one-to-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have undergone a similar experience.

CancerCare

Lymphomation.org

Lymphomation.org provides a helping hand from patient to patient by sharing evidence-based information and voicing the patient perspective in the fight against NHL.

The Leukemia and Lymphoma Society

The Society is a national voluntary health agency dedicated solely to seeking the cause and eventual cure of leukemia, lymphoma, multiple myeloma and Hodgkin’s disease.

Lung Cancer Sites

CancerConnect Lung Cancer Community:

CancerConnect Lung cancer Community provides current, comprehensive, reliable information on Lung cancer and a community where Lung cancer patients can exchange information and get support and inspiration.

GO2 Foundation for Lung Cancer

We work to change the reality of living with lung cancer by ending stigma, increasing public and private research funding, and ensuring access to care.

Mesothelioma Cancer Center

Committed to providing the latest, up-to-date information to our visitors in hopes of creating awareness about the dangers of asbestos.

Lymphedema Sites

Lymphedema Cancer Information Center

Cancer Consultants Lymphedema Cancer Information Center provides current, comprehensive, authoritative information on the prevention, diagnosis, and management of lymphedema.

Cancer Hope Network

Offers free, confidential one-to-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have undergone a similar experience.

National Lymphedema Network

NLN’s mission is to standardize quality treatment for lymphedema patients nationwide. In addition, the NLN support research into the causes and possible alternative treatments for this often incapacitating, long-neglected condition.

Multiple Myeloma Sites

CancerConnect Multiple Myeloma Community

CancerConnect Multiple Myeloma Community provides current, comprehensive, reliable information on Multiple Myeloma cancer and a community where Multiple Myeloma cancer patients can exchange information and get support and inspiration.

The International Myeloma Foundation

The International Myeloma Foundation helps anyone battling multiple myeloma – patients, family, friends, caregivers and the medical and scientific communities. The IMF also has a hotline where people can call to get case specific questions answered.

The Multiple Myeloma Research Foundation

The MMRF focuses on the following four goals: funding research, raising awareness, providing information, and building collaboration. The Multiple Myeloma Information Center provides information about treatment options, new and innovative therapies through clinical trials, supportive care, complementary and alternative medicine, genetic testing, and screening and prevention.

Myeloproliferative Neoplasms

CancerConnect MPN Community

CancerConnect MPNCommunity provides current, comprehensive, reliable information on PV, ET, and MF and a community where Multiple Myeloma cancer patients can exchange information and get support and inspiration.

MPN Research Foundation

Partner. Advocate. Friend. At the MPN Research Foundation, we’re committed to standing with you in the fight against polythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF) – the group of blood cancers collectively known as myeloproliferative neoplasms.

PV State of Mind

Resource for individuals facing a diagnosis of polycythemia vera

Ovarian Cancer Sites

CancerConnect Ovarian Cancer Community

CancerConnect Ovarian cancer Community provides current, comprehensive, reliable information on Ovarian cancer and a community where Ovarian cancer patients can exchange information and get support and inspiration.

FORCE (Facing Our Risk of Cancer Empowered)

FORCE is a support and information site for women at risk of hereditary breast and ovarian cancer due to family history or BRCA genetic status.

National Ovarian Cancer Coalition

The National Ovarian Cancer Coalition’s mission is to raise awareness about ovarian cancer and to promote education about the disease. By dispelling myths and misunderstandings, the Coalition is committed to improving the overall survival rate and quality of life for women with ovarian cancer. The Coalition provides help and hope about ovarian cancer with public education and awareness, state divisions, a toll-free Help Line, comprehensive web site, peer support, publications and special projects.

Pancreatic Cancer Sites

CancerConnect Pancreatic Cancer Community

CancerConnect Pancreatic cancer Community provides current, comprehensive, reliable information on Pancreatic cancer and a community where Pancreatic cancer patients can exchange information and get support and inspiration.

Pancreatic Cancer Action Network

The Pancreatic Cancer Action Network is the national organization creating hope in a comprehensive way through research, patient support, community outreach and advocacy for a cure. The organization is leading the way to increase the survival rate for people diagnosed with this devastating disease through a bold initiative–The Vision of Progress: Double the Pancreatic Cancer Survival Rate by 2020. Together, we can know, fight and end pancreatic cancer by intensifying our efforts to heighten awareness, raise funds for comprehensive private research, and advocate for dedicated federal research to advance early diagnostics, better treatments and increase chances of survival. Visit www.pancan.org for more information.

The Lustgarten Foundation for Pancreatic Cancer Research

The mission of the Lustgarten Foundation is to advance the scientific and medical research related to the diagnosis, treatment, cure and prevention of pancreatic cancer.

Prostate Cancer Sites

CancerConnect Prostate Cancer Community

CancerConnect Prostate cancer Community provides current, comprehensive, reliable information on Prostate cancer and a community where Prostate cancer patients can exchange information and get support and inspiration.

Male Care

Male Care provides prostate cancer treatment and survival articles written by patient and doctors that are updated weekly.

My Prostate Cancer Treatment

Learn about prostate cancer & determining your prostate cancer risk level.

PAACT

PAACT is a not-for-profit (501) (c) (3) organization, funded by its members, that provides information, support and literature about Prostate Cancer.

Prostate Cancer Research Institute

The Prostate Cancer Research Institute’s mission is to improve the quality of men’s lives by disseminating information that educates and empowers patients, families and the medical community through our Helpline, website, and free newsletter “PCRI Insights.”

The Prostate Net

The Prostate Net is dedicated to providing credible information that enables patients and health professionals to partner in making the appropriate choices, to assure the best chance for a cure and retention of the desired quality of life.

Us Too

US-Too! provides information, counseling and educational meetings to assist men with prostate disease in making decisions about their treatment with confidence and support.

Skin Cancer Sites

Melanoma Research Foundation

Melanoma Research Alliance

The Skin Cancer Foundation

Testicular Cancer Sites

CancerConnect Testicular Cancer Community

CancerConnect Testicular cancer Community provides current, comprehensive, reliable information on Testicular cancer and a community where Testicular cancer patients can exchange information and get support and inspiration.

Cancer Hope Network

Offers free, confidential one-to-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have undergone a similar experience.

Stupid Cancer

Testicular Cancer Resource Center

TCRC is devoted to providing accurate and timely information and support on all aspects of testicular cancer and extragonadal germ cell tumors.

Young Adults Sites

Stupid Cancer

Young Adults With Cancer | LIVESTRONG

The Ulman Cancer Fund for Young Adults

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